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Cancer registries and population surveillance

The public systems that count every cancer diagnosis and death in a country, which tell us whether incidence and survival are improving.

Population-based registries (US SEER and NPCR, England's NDRS, the Nordic registries, Canada, Australia, Japan, IARC's GLOBOCAN compilation) and hospital registries (NCDB) record incidence, stage, treatment, and survival; they underpin screening evaluation, disparities research, and the CONCORD global survival comparisons. Coverage and data completeness vary widely; many low- and middle-income countries lack population registries, so global burden estimates are modelled.

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How it works

Registries rest on mandatory reporting from pathology labs and hospitals, record linkage to death and census data, and standard coding (ICD-O-3, TNM) with quality indicators.

Strengths
  • Unbiased population denominator
  • Long time series
Limitations
  • 2-3 year reporting lag
  • Little treatment or biomarker detail in many registries
  • Coverage gaps globally

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Query for this technology: (TITLE:"Cancer registries and population surveillance" OR ABSTRACT:"Cancer registries and population surveillance") AND (cancer OR tumor OR tumour OR oncology OR carcinoma OR lymphoma OR leukemia OR leukaemia OR myeloma OR sarcoma OR melanoma OR glioma). Results are unfiltered search hits about Cancer registries and population surveillance, not a curated reading list.

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