Weekly symptom check-ins with automatic alerts as standard of care on treatment
Patients on chemotherapy or immunotherapy answer a short weekly symptom questionnaire on their phone; severe answers alert the nurse the same day. Trials show this prolongs life.
Electronic patient-reported outcome monitoring with nurse alerts improved quality of life, reduced emergency visits and improved overall survival in a randomised trial at Memorial Sloan Kettering (Basch et al.) and in the PRO-TECT cluster-randomised trial in community practices. Uptake remains low because nobody is paid for the nursing time. The proposal is a reimbursed care standard: every patient on active systemic therapy is offered weekly ePRO monitoring with defined alert thresholds and response times, and payers cover the monitoring as they cover a drug.
- Patients lack understanding, navigation and agency · Most patients cannot understand their options, find trials, or push back, so decisions are made for them.
- Toxicity and quality of life are undervalued · Trials measure how long people live, not how they live. Side-effects are under-reported and under-treated.
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not linked directly; found by shared links- IdeaPatient-reported side-effects (PRO-CTCAE) collected and published in every registrational trial
Shares Basch: asking patients to report symptoms online during chemotherapy improved survival, Toxicity and quality of life are undervalued.
- IdeaWeekly electronic symptom reporting as a standard of care during systemic therapy
Shares Basch: asking patients to report symptoms online during chemotherapy improved survival, Toxicity and quality of life are undervalued.
- PersonJimmie Holland
Shares Patients lack understanding, navigation and agency, Memorial Sloan Kettering Cancer Center, Toxicity and quality of life are undervalued.
- IdeaPatient-reported symptoms captured as standard structured data in every clinic
Shares Basch: asking patients to report symptoms online during chemotherapy improved survival, Toxicity and quality of life are undervalued.
- IdeaDose adjustments driven by patients' own symptom reports, tested against clinician judgement
Shares Patients lack understanding, navigation and agency, Toxicity and quality of life are undervalued.
- IdeaReport time toxicity, the days a treatment consumes, in every trial and decision aid
Shares Patients lack understanding, navigation and agency, Toxicity and quality of life are undervalued.
- PersonRose Kushner
Shares Patients lack understanding, navigation and agency, Toxicity and quality of life are undervalued.
- IdeaTime to treatment failure and quality of life as co-primary endpoints in non-curative trials
Shares Patients lack understanding, navigation and agency, Toxicity and quality of life are undervalued.