Weekly electronic symptom reporting as a standard of care during systemic therapy
Patients on chemotherapy who report their symptoms weekly through an app, with nurses acting on alerts, live longer and visit emergency rooms less. This should be routine and paid for.
Randomised trials (Basch and colleagues, 2016-2022) showed that routine electronic patient-reported outcome monitoring with nurse response improves quality of life, reduces emergency visits, and in one trial improved overall survival. Adoption remains patchy because of workflow and payment barriers. The proposal is to make PRO monitoring a reimbursed standard of care during systemic therapy, with minimum response standards and open symptom item sets.
- Fragmented care and guideline gaps · Patients fall between specialists, wait for referrals and often do not get the treatment guidelines say they should.
- Toxicity and quality of life are undervalued · Trials measure how long people live, not how they live. Side-effects are under-reported and under-treated.
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not linked directly; found by shared links- IdeaPatient-reported side-effects (PRO-CTCAE) collected and published in every registrational trial
Shares Basch: asking patients to report symptoms online during chemotherapy improved survival, Toxicity and quality of life are undervalued.
- IdeaOncology hospital-at-home with remote monitoring for toxicity
Shares Fragmented care and guideline gaps, Toxicity and quality of life are undervalued.
- IdeaWeekly symptom check-ins with automatic alerts as standard of care on treatment
Shares Basch: asking patients to report symptoms online during chemotherapy improved survival, Toxicity and quality of life are undervalued.
- IdeaA standard handoff with medication reconciliation at every cancer care transition
Shares Fragmented care and guideline gaps, Toxicity and quality of life are undervalued.
- IdeaPatient-reported symptoms captured as standard structured data in every clinic
Shares Basch: asking patients to report symptoms online during chemotherapy improved survival, Toxicity and quality of life are undervalued.
- IdeaAcute oncology assessment units so sick cancer patients bypass the emergency department
Shares Fragmented care and guideline gaps, Toxicity and quality of life are undervalued.
- IdeaHospital-at-home for oncology: treating low-risk febrile neutropenia and dehydration at home
Shares Fragmented care and guideline gaps, Toxicity and quality of life are undervalued.
- Key paperASCO 2021 guideline: how to recognise and manage the immune-related side effects of checkpoint inhibitors
Shares Fragmented care and guideline gaps, Toxicity and quality of life are undervalued.