A survivorship research endowment funded by a levy on curative therapy prices
Tens of millions of people live after cancer with heart damage, infertility and second cancers. A tiny levy on the price of curative treatments would build a permanent fund to study and treat late effects.
Health systems and payers negotiate a 0.5% levy on reimbursed prices of curative-intent oncology drugs and radiotherapy into an independent endowment for late-effects research and survivorship services: long-term cohort follow-up, cardio-oncology and fertility-preservation trials, second-cancer surveillance and return-to-work interventions. The logic is that the cost of cure includes the cost of living with its consequences, and that no manufacturer has an incentive to fund it.
- Funding follows fashion, not burden · Money goes to the cancers and questions that are easy or popular, not the ones that kill most or where a dollar would do most.
- Survivorship and late effects are neglected · Tens of millions of people live after cancer with heart damage, infertility, second cancers and fear, and few services.
Pages like this
not linked directly; found by shared links- IdeaTrials of structured cognitive rehabilitation for cancer-related cognitive impairment
Shares Structured exercise prescribed like a drug in all curative-intent cancer care, Exercise & lifestyle oncology, Survivorship and late effects are neglected.
- IdeaA dedicated programme for cachexia and treatment toxicity research
Shares Structured exercise prescribed like a drug in all curative-intent cancer care, Cardio-oncology, Exercise & lifestyle oncology, Funding follows fashion, not burden.
- IdeaFertility preservation offered and funded by default before gonadotoxic treatment
Shares Survivorship and late effects are neglected, Hodgkin lymphoma, Acute lymphoblastic leukaemia.
- IdeaDefault fertility preservation referral for every patient under 40 before treatment
Shares Survivorship and late effects are neglected, Hodgkin lymphoma, Acute lymphoblastic leukaemia.
- IdeaTailored screening for second cancers in survivors with known high-risk exposures
Shares Survivorship and late effects are neglected, Hodgkin lymphoma, HR-positive / HER2-negative breast cancer.
- IdeaRisk-stratified lifelong care for tens of millions of survivors, automated and shared with primary care
Shares Cardio-oncology, Survivorship and late effects are neglected.
- IdeaPay for supervised exercise the way we pay for drugs
Shares Structured exercise prescribed like a drug in all curative-intent cancer care, Exercise & lifestyle oncology, Survivorship and late effects are neglected, HR-positive / HER2-negative breast cancer.
- IdeaA survivorship passport app for adolescent and young adult survivors
Shares Survivorship and late effects are neglected, Hodgkin lymphoma, Acute lymphoblastic leukaemia.