Dynamic consent with usage receipts
An app where patients choose what their data can be used for, see every time it is used, and can switch permissions on or off.
Dynamic consent replaces the one-off paper form with an ongoing digital relationship: granular preferences (commercial use, genomic data, contact for trials), notifications when data are used, and revocation that propagates to data holders. Pilots in Australia (CTRL platform) and rare-disease registries have shown feasibility. The oncology-specific version adds automatic trial-matching alerts as a return of value to the patient.
- Data silos · Records, scans, genomes and outcomes sit in separate systems that cannot talk. Every patient's experience is lost to the next.
- Patients lack understanding, navigation and agency · Most patients cannot understand their options, find trials, or push back, so decisions are made for them.
Pages like this
not linked directly; found by shared links- IdeaA patient-owned, portable complete cancer record in a standard format
Shares Patient Data Vault (data-vault.health), Patients lack understanding, navigation and agency, Data silos.
- IdeaA cancer data donor card: patient-controlled donation of records for research
Shares Patient Data Vault (data-vault.health), Patients lack understanding, navigation and agency, Data silos.
- IdeaPatients are told which trials they qualify for at every treatment decision, in writing
Shares AI trial matching & clinical decision support, Patients lack understanding, navigation and agency.
- IdeaDirect record-to-database data capture: no manual transcription, no full source verification
Shares AI trial matching & clinical decision support, Data silos.
- IdeaA patient-held cancer record that travels across providers and borders
- IdeaA dedicated clinic for people whose blood test says the cancer is back
Shares AI trial matching & clinical decision support, Patients lack understanding, navigation and agency.
- IdeaA live 'seats available' feed for trial slots, like airline inventory
Shares AI trial matching & clinical decision support, Data silos.
- IdeaTrial matching inside the electronic record at the moment a treatment is chosen
Shares AI trial matching & clinical decision support, Data silos.