A machine-readable treatment summary handed to every patient and readable by any hospital
Patients moving between hospitals often carry paper folders or nothing. A standard electronic summary of diagnosis, treatments, and doses that any system can read would stop repeated tests and dangerous gaps.
Cancer care crosses institutions, regions, and countries, and treatment history is frequently lost or reconstructed from memory. A standard summary (diagnosis, stage, molecular results, regimens with cumulative doses, radiotherapy fields and doses, key toxicities, follow-up plan) in an interoperable format such as HL7 FHIR mCODE, generated automatically and held by the patient, would make continuity possible. The technical standards exist; the missing pieces are mandates and defaults.
- Fragmented care and guideline gaps · Patients fall between specialists, wait for referrals and often do not get the treatment guidelines say they should.
- Data silos · Records, scans, genomes and outcomes sit in separate systems that cannot talk. Every patient's experience is lost to the next.
- Survivorship and late effects are neglected · Tens of millions of people live after cancer with heart damage, infertility, second cancers and fear, and few services.
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not linked directly; found by shared links- IdeaRisk-stratified lifelong care for tens of millions of survivors, automated and shared with primary care
Shares Survivorship and late effects are neglected, Fragmented care and guideline gaps.
- IdeaDefault fertility preservation referral for every patient under 40 before treatment
Shares Survivorship and late effects are neglected, Fragmented care and guideline gaps.
- IdeaA national late-effects registry linking treatment exposures to outcomes decades later
Shares Survivorship and late effects are neglected, Data silos.
- IdeaA patient-held cancer record that travels across providers and borders
- InstitutionIntermountain Health Cancer Center
- IdeaLive guideline-concordance dashboards for every tumour board, generated from the record
- InstitutionEuropean Cancer Organisation
Shares Survivorship and late effects are neglected, Fragmented care and guideline gaps.
- IdeaFour weeks of training and nutrition before major cancer surgery, as standard
Shares Survivorship and late effects are neglected, Fragmented care and guideline gaps.