Drop the 'must speak English' rule: translated consent and questionnaires as standard
Many trials quietly exclude people who do not speak the local language because consent forms and questionnaires exist only in that language. Providing translations and interpreters for the commonest languages would fix this.
Protocols may not exclude on language; sponsors provide certified translations of consent and patient-reported outcome instruments in the languages spoken by at least 5 percent of the catchment population (with linguistically validated PRO versions), and fund professional interpreters for visits. Validated translations of common PRO instruments already exist for dozens of languages.
- Trials do not represent the people who get cancer · Older, Black, Hispanic, Asian, rural, poor and multimorbid patients are under-represented, so results may not apply to them.
- Trials enrol too few, too slowly · Fewer than one in ten adults with cancer joins a trial. Trials close for lack of patients, not lack of ideas.
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not linked directly; found by shared links- IdeaPay trial participants for their time, not only their expenses
Shares Trials do not represent the people who get cancer, Trials enrol too few, too slowly.
- IdeaTravel, lodging and meals reimbursed as a standard line in every trial budget
Shares Trials do not represent the people who get cancer, Trials enrol too few, too slowly.
- IdeaCommunity health workers and trusted local organisations paid to recruit for trials
Shares Trials do not represent the people who get cancer, Trials enrol too few, too slowly.
- IdeaAt least a third of pivotal-trial sites in community and rural settings
Shares Trials do not represent the people who get cancer, Trials enrol too few, too slowly.
- IdeaRemove blanket exclusions for mental illness and dementia; support consent instead
Shares Trials do not represent the people who get cancer, Trials enrol too few, too slowly.
- IdeaMobile research units bring trial visits to rural towns
Shares Trials do not represent the people who get cancer, Trials enrol too few, too slowly.
- IdeaLay trial navigators funded per centre, evaluated in a randomised trial
Shares Trials do not represent the people who get cancer, Trials enrol too few, too slowly.
- IdeaStop excluding people with a prior cancer, controlled HIV, or treated hepatitis
Shares Trials do not represent the people who get cancer, Trials enrol too few, too slowly.