Broad research consent as a routine step of the cancer pathway
Every newly diagnosed patient would be asked, as part of standard care, whether their data and leftover tissue can be used for research, so researchers never have to go back and ask.
Cancer centres such as Memorial Sloan Kettering and the Princess Margaret already consent a majority of patients to institutional research protocols at first visit. The proposal is to make this a nationally standardised pathway step with a common consent text and a shared flag in the record, so that data from consented patients can be pooled across centres without re-consent. Ethics committees would recognise the common consent as sufficient for defined categories of research.
- Data silos · Records, scans, genomes and outcomes sit in separate systems that cannot talk. Every patient's experience is lost to the next.
- Trials enrol too few, too slowly · Fewer than one in ten adults with cancer joins a trial. Trials close for lack of patients, not lack of ideas.
Pages like this
not linked directly; found by shared links- IdeaPoint-of-care randomisation built into the oncology record
- InstitutionCanadian Cancer Society
Shares Princess Margaret Cancer Centre, Trials enrol too few, too slowly.
- InstitutionOntario Institute for Cancer Research
- IdeaA mandatory trial line in every tumour board recommendation
Shares Trials enrol too few, too slowly, Memorial Sloan Kettering Cancer Center.
- IdeaA live 'seats available' feed for trial slots, like airline inventory
- IdeaTrial matching inside the electronic record at the moment a treatment is chosen
- IdeaA public map of trial deserts to steer where new sites open
- InstitutionHL7 International